Sunday, June 14, 2009

News I'd like to share . . .

Ten years ago this fall I was diagnosed with Lupus. This news was a little hard to accept since out of the litany of symtoms associated with Lupus, I had one. Joint pain. I obviously was not at all happy to receive this news and, of course, had to face every potential worst case scenario that an illness like this could bring. However, there was some comfort in the form of a very clear message of the spirit that told me I would not deal with this my whole life, and as can happen when we are told something by the spirit, I believed this as sure as I believe in the sun rising and setting.

As my doctor and I were working through various forms of medication to get control of the joint pain I found myself unexpectedly expecting. I very thankfully had an obstetrician appointment already scheduled. So I had my first prenatal visit at 6 weeks along. I cannot tell you how many times I have thanked Heavenly Father that that appointment was already in place. You see, I had no idea at the time how complicated a pregnancy could be with Lupus and on my own I would not have gone in until after the 12th week.

I was grateful because we were already in trouble and the next 8 months were filled with biopsy's, a lot of medication and several doctors with their accompanying visits.

Those who were around may recall the tell tale signs of corticol steroids, i.e. the huge face, zits and warts which brought on the whole separate issue of facing myself in the mirror every day trying to remember who "I" was, along with worrying for the child I was carrying, as the challenges he was potentially facing were huge as well.

Skip ahead, blessings were given, prayers were heard and although he came early, Brennan was fine. And so was I. Minimal damage done. Whewwww!

Now, my very smart, very active little miracle is a perfectly normal 8 year old.

Aside from a relapse a few years ago, I was a little lackadasical about taking my medication, my health is perfect.

And here is the good news I would like to share . . . my doctor dropped one of my medications and would like me to consider dropping "THE" drug that has kept me healthy these last few years. I may just not need it anymore!!!!! I may never have a Lupus flair again! WOW!

My personal mantra is "Lupus does not run my life, nor will it ruin my life." The only reminder on a daily basis that I have this disease is when I take my medications for the day. What will life be like if I don't even have that? I smile at the possibilities.

The moral for me in this is that prayers are answered. Of course they are almost never answered on our timeline but they are and of course prayers are not always answered the way we want them, but if I could have seen today from my eyes ten years ago I think I would have been okay with the outcome, but I certainly needed the journey.


Kathy said...

What a wonderful story. You are such a great example.

LFA said...

Hey there ... my name is Wick Davis and I'm with the Lupus Foundation of America. I came across your blog and wanted to say hi. I'm in the process of reaching out to other lupus bloggers. I was wondering if you'd be interested in exchanging links to one another's blog. You can read the LFA blog here I have already added a link to your blog on the LFA blog, in the section called "Lupus Blogs We Read." I would love to talk more with you. You can reach me at I hope to hear from you. best, Wick

Ty and Dani said...

Okay I was reading this post and thought I had to say thank you for your words. My mother in-law has MS and it has been a journey for her and us, but it is always brings you peace of mine when you hear of Heavenly Father's love from others. We wish you the very best.

Korbi said...

This is WONDERFUL news! COngrats!!! :)

DJ and Melissa said...

Instead of now thinking of the Monster as a mean thing that wants nothing but to cause me misery, it has now turned into a Monster from one of my favorite children's book series where all the characters were monster. So its an endearing term now.

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